March 21, 2025 | Quebec City, Quebec | Health Canada

In Canada, one in 12 people live with a rare disease, and for most people affected, the cost of treatment is unaffordable. Canadians deserve a health care system that provides timely access to quality health services and medications, including effective drugs for rare diseases, regardless of where they live or their ability to pay.

Today, the Honourable Kamal Khera, Canada’s Minister of Health, announced an agreement with Quebec investing over $305 million to support access to new and existing drugs, early diagnosis, and screening for rare diseases and Quebec’s Action Plan on Rare Diseases 2023-2027. This agreement will improve access to healthcare for Quebecers, in line with Quebec’s priorities.

The Government of Canada remains committed to working with provinces and territories to improve health care for all Canadians, including access to affordable prescription medications, and to achieving better health outcomes for everyone.